HOLE IN THE HEART
Book ID/图书代码： 09580016B87401
English Summary/英文概要： The mother of a daughter with Down’s Syndrome shares her family’s journey — in beautiful black and white drawings — from hospital to home, and from early years to school, in this moving, wise and unsparing graphic memoir.
On Mother’s Day 2001 Henny Beaumont gave birth to her third child. For the first four hours, her baby seemed no different from her two other little girls.
When the registrar told Henny and her husband that their daughter might have Down’s Syndrome, she knew that her life was over. How would she be able to look after this baby, who might die, and manage her other two children at the same time? How did this weak little baby, who needed so much more from Henny than her other two children, provoke such feelings of hatred and resentment? How can she learn to love her? And if she can’t trust her own reactions to Beth, how can she expect other people to overcome their prejudices and ignorance about her condition?
Hole in the Heart shares Henny’s journey in an accessible and entertaining way, not only with those who have had a similar experience, or the medical professionals involved, but with a wider public – people who may have wondered how to behave towards families with disabled children, or who may be struggling with the idea of being an inadequate parent. Henny’s experience may be very particular and extreme, but we are all competitive and anxious about our children, wondering where they fit in on a scale of achievement, whether we do enough for them, and whether we love them enough.
Hole in the Heart is a moving, at times, funny, ironic and refreshingly honest look at living with a child who has special needs. As the PE teacher says, ‘who is the one with special needs?’
‘Wise, funny, life--‐affirming.’ Community Living
Chinese Summary/中文概要： 2001年的母亲节，亨妮•博爱特产下了她的第三个孩子。在头四个小时里，这个孩子看上去和她的两个姐姐并没有什么两样。
但是当医生告诉亨妮和她的丈夫他们的女儿贝丝可能患有唐氏综合症时，亨妮觉得一切都完了。她怎么可能有精力同时照顾这个脆弱的婴儿和两个尚且年幼的女儿呢？贝丝需要亨妮额外的诸多注意和照顾，从而使亨妮感到怨恨和不满，亨妮该怎么学会去爱她呢？如果连母亲都不能接受她的话，又怎么指望其他人对她没有歧视和偏见呢？
《心上的空洞》以一种平易近人、有趣轻松的方式与读者分享了她的故事，不仅仅是和亨妮一样有同样经历的家庭、唐氏综合症领域的医学专家分享，也是同更为广的受众，例如那些不知道该如何面对有残疾孩子家庭以及认为自己是不合格父母的人群分享。亨妮的生活经历可能有些特殊和极端，但谈到自己的孩子，我们都焦虑万分，对他们是否能获得成功，我们做的是否够好，我们对他们的爱是否足够都心存疑虑？
《心上的空洞》是一部感人、有趣、尖锐、诚恳的作品，审视了如何与有特殊要求的孩子相处的问题。如同体能老师常说的，“有特殊需求的到底是谁呢？”
“智慧、有趣、生活化、有说服力。”——《社区生活》(XAT)
Awards/获奖情况：
About the Author/作者介绍： 亨妮•博爱特是一位伦敦的艺术家和插画家。她拥有坎伯威尔艺术学院版画制作文学硕士学位，目前就职该学院的客座讲师。她曾为新河的视听应用APP工作，并在2013年出版了创意制作的书籍。亨妮拥有4个孩子。
Henny Beaumont is a London--‐based artist and portrait painter. She has an MA in Fine Art printmaking at Camberwell College of Art, where she has also been a visiting lecturer. She worked on an audio visual App for the New River and was published in Journal of writing in creative practice 2013. She has four children.
Format:HARDCOVER
Rights Status/版权销售情况：Simplified Chinese/简体中文：AVAILABLE
Complex/Traditional Chinese/繁体中文：AVAILABLE
Sales in other countries/其他国家销售情况：USA & Canada (Penn State University Press)
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