CHASING MIRACLES: THE CROWLEY FAMILY JOURNEY OF STRENGTH, HOPE, AND JOY
Book ID/图书代码： 09775009B32462
English Summary/英文概要： A personal memoir from the family that inspired the film Extraordinary Measures, starring Brendan Fraser, Harrison Ford, and Keri Russell—a father’s story of his determination to save the lives of his two youngest children born with a rare genetic disorder and finding hope, strength, and joy despite extraordinary challenges.
When John and Aileen Crowley’s learned that their two youngest children had a rare and little understood genetic disorder, they didn’t hope for miracles: they made them happen.
In 1998, 15-month old Megan and 4-month old Patrick were diagnosed with Pompe disease, a rare and fatal neuromuscular disorder that affects only a few thousand children worldwide, usually leaving them with little to no muscle function, enlarged hearts, and severe difficulty breathing. The Crowleys were told to take their children home and “enjoy their short time together… there is nothing that can be done.”
From his blue-collar upbringing in New Jersey, John Crowley, a recent Harvard MBA graduate working at Bristol-Myers Squib, was just beginning to taste success in corporate America. Now he was absolutely determined to find a treatment to save the children’s lives. Frustrated with the pace of Pompe research, at the age of 31 Crowley walked away from the corporate world to help co-found a start-up biotech company, focused exclusively on developing a treatment for Pompe.
Written by John Crowley with Ken Kurson (co-writer of Leadership with Rudy Giuliani), Chasing Miracles is the story of how the Crowleys set out to do “whatever it takes" against phenomenal odds to help Megan and Patrick first to survive, and then to thrive—and to keep their family, including oldest son John, Jr., together and their marriage strong. A truly uplifting and inspiring book that captures this remarkable family’s everyday life, this is a memoir about life and love; about coping with adversity; and, most importantly, about what it means to never, never quit.
Chinese Summary/中文概要： 這是一本回憶錄，記述了一位父親為了拯救兩位孩子的生命，在尋找希望和幸福的過程中，自始至終永不言棄的感人故事。由影星布蘭登‧費雪Brendan Fraser、哈里遜‧福特Harrison Ford和凱麗‧羅素Keri Russell共同出演的影片《良醫妙藥》（Extraordinary Measures）（臺灣目前暫訂上映日期2010年5月）便改編自這個真實的故事。
電影網址：www.extraordinarymeasuresthemovie.com
當約翰‧克勞利John Crowley同妻子愛琳Aileen得知，他們新生的兩個孩子被診斷出患有一種罕見的遺傳疾病時，這對夫婦並沒有選擇坐等奇蹟的發生，而是去努力的創造奇蹟！
1998年，15個月大的梅根Megan同4個月大的派翠克Patrick相繼被查出患有「龐貝氏症」Pompe。「龐貝氏症」是一種極其罕見且致命的神經肌肉遺傳疾病，在全世界也僅有一千多個兒童病例，該疾病會導致患兒喪失肌肉功能，引發心臟肥大並伴有嚴重的呼吸困難。院方考慮到時日無多建議克勞利夫婦不妨儘早將孩子接回家，以共度最後的時光，除此之外，醫生們無能為力。
約翰，克勞利生於美國新澤西洲一個普通的藍領家庭，取得MBA學位後，很快就在大型企業百時「美施貴寶」Bristol-Myers Squibb找到了工作，正在他事業蒸蒸日上之際，卻不幸遭此變節。基於對該病症治療研究現狀的不滿，決心挽救孩子生命的克勞利，在他31歲那年毅然放下為之奮鬥的事業，轉而與他人合作，共同創辦了一家生物技術公司，致力於尋找攻克龐貝氏症的方法。
本書由約翰‧克勞利與肯‧克森共同編撰(後者與前紐約市長魯迪·朱利亞尼共同創作了《領袖》一書)。《愛的奇蹟》是一本感人至深並發人反省的故事。它不僅記錄著這個家庭的生活足跡，同時作為一本回憶錄，也向我們詮釋了愛與生命如何戰勝逆境，更為重要的是，詮釋了什麼叫做真正的永不放棄。(WHL & VL)
Awards/获奖情况：
About the Author/作者介绍： 約翰‧克勞利JOHN F. CROWLEY是一名企業家。他的父親曾是一名新澤西員警，在他7歲那年不幸因公殉職。約翰曾先後就讀於喬治敦大學Georgetown University，美國聖母大學法學院Notre Dame Law School及哈佛商學院。在為了攻克龐貝氏症而白手創立生物科技公司前，他曾在全美大型企業百時美施貴寶Bristol-Myers Squibb任職。
肯‧克森Ken Kurson，紐約時報暢銷著作《領袖》Leadership的協同作者，並和David Faber共同著作The Faber Report。在男性雜誌Esquire擔任編輯十年之久，還為「富比世」Forbes、 「錢」Money及「紐約時報」等知名書刊撰稿.http://www.crowleyfamily5.com/
Format:HARDCOVER
Rights Status/版权销售情况：Simplified Chinese/简体中文：AVAILABLE(到期可授)
Complex/Traditional Chinese/繁体中文：AVAILABLE(到期可授)
Sales in other countries/其他国家销售情况：
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