OLD BEFORE MY TIME: HAYLEY OKINES’ LIFE WITH PROGERIA
Book ID/图书代码: 00770012B52764
English Summary/英文概要: The extraordinary life of Britain s 100-year-old teenager. Hayley Okines is like no other 13-year-old schoolgirl. Born with the rare genetic condition progeria, she ages eight times faster than the average person. In medical terms her body is like that of a 100-year-old woman. Yet she faces her condition with immense courage and a refreshing lack of self-pity. In Old Before My Time, Hayley reflects on her unusual life. Share Hayley s excitement as she travels the world meeting her pop heroes Kylie, Girls Aloud and Justin Bieber and her sadness as she loses her best friend to the disease at the age of 11. Now as she passes the age of 13 the average life expectancy for a child with progeria Hayley and her mum Kerry talk frankly about her hopes for the future and her pioneering drug trials in America which could unlock the secrets of ageing for everyone...
Chinese Summary/中文概要: 英國少女海莉•奧金斯僅有14歲(2012年),卻因患有早衰症,容貌看起來像年逾古稀的老婦。醫生曾斷言她活不過13歲,然而樂觀的海莉近日不僅迎來了她的14歲生日,還出版了自傳《未年輕便老去》。
沒有一個13歲女生能像Hayley Okines(海莉•奧金斯)那樣擁有這樣一個不同的人生。她出生時便診斷出患有一種罕見的兒童基因病變。她年齡衰老速度比平常人要快8倍。從醫學術語來解釋她的身體狀況,就像是一位百歲的女士。然而,她以無比的勇氣和沁人心扉的自愛面對著自已身體的條件情況。在《In Old Before My Time》自傳中,海莉和她的母親Kerry(克裡)回顧了那些不同尋常的生活。當海莉環遊世界時,遇見她的那些流行偶像們Kylie, Girls Aloud和Justin Bieber。她在11歲時,痛失了一位與自己同患此病的最好朋友而倍感傷心。如今她渡過了自己13歲—— 對於一位患有早衰症的兒童來說那正是平均壽命 —— 海莉坦誠地說自己希望未來在美國的首創實驗性藥方,能為每個人破解老齡化的秘密。(Sandy)
Awards/获奖情况:“海莉是一位了不起的女孩。”——凱莉•米洛“海莉是我們看到的,擁有著最為頑強的生命力的一位女孩。” Richard & Judy
Hayley s an extraordinary girl ---Kylie Minogue
Hayley just lights up a room. She s so full of happiness. ---Lorraine Kelly
Hayley possesses one of the strongest life-forces we have ever encountered. ---Richard and Judy
Hayley’s an extraordinary girl ---Kylie Minogue
Hayley just lights up a room. She’s so full of happiness ---Lorraine Kelly
About the Author/作者介绍: 自海莉四歲大時,便一直出現在廣受好評的第五頻道《非常特別的人》系列節目中。面對170萬觀眾現場直播她的影像。海莉具有獨特的個人魅力,目前她的第五部紀錄片《Hayley’s Teenage Dream》將在九月份的第五頻道播放。第一次她將講述自己的人生。Hayley has been the face of Channel 5’s critically acclaimed Extraordinary People series since she was just 4 years old. Her films have aired to audiences of 1.7 million. Hayley is a captivating personality and is currently filming her fifth documentary Hayley’s Teenage Dream which will be broadcast on C5 in September. For the first time she will also narrate the documentary.
Format:照片
Rights Status/版权销售情况:Simplified Chinese/简体中文:AVAILABLE(到期可授)
Complex/Traditional Chinese/繁体中文:AVAILABLE(到期可授)
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